"He doesn't really talk about [his condiition]. It's not that important. I've noticed him being a little more self-conscious now that he's a teenager. But it never bothered him before. . .
"I still worry more about the little things. . . All the other surgeries came upon us so quickly. You know, I felt the same way then. Oh, he's had this surgery, he's doing well, and then all of a sudden he's regressed or he's had a little episode. And then it all comes back. But in between I was always really optimistic, and he's doing so well. So it's hard to let go of that completely. A parent always worries. . . I don't know that I'm that different from other mothers. I just had a bit more to worry about."
- penny, mother