My Heart vs. the Real World is a photo documentary book that explores the lives of children with congenital heart disease (CHD) through photographs and interviews with the subjects and their families.


There are ten children covered, and in an additional chapter, in the spirit of solidarity, I give myself the same treatment. I was born three months premature, with a congenital heart defect, and have had a pacemaker since the age of eight. That's my x-ray on the cover. It's not easy getting those things out of hospitals, too.

The book is published by Cold Spring Harbor Laboratory Press, and is available from their website or from amazon.


For more information please visit our dedicated book website at heartkidsproject.org

Thanks.