post i’m a lot closer to it than a lot of people

February 8th, 2010

Filed under: My Heart: The Book,Personal — max @ 8:27 pm

this week i’m headed off to orlando to the cardiology 2010 conference. i’ll be speaking and signing books there saturday night (2.13.10) at the disney contemporary resort. if you’re in the neighborhood please stop by and say hello!

as part of my presentation to the conference i made this short film. this conference is mostly a medical one, with 26 of us (out of 900 attendees) being classified as “miscellaneous.” a long while ago i met a CHD researcher who told me that one thing doctors and scientists often miss out on is information on the emotional lives of their patients. given that, i wanted to show how some of the subjects from the book are doing now, as young adults out in the world. they’re dealing with the same things we all have to contend with – school, the future, family, love, fear. and they’re all a whole lot more interesting than listening to me speak!

my recommendation: watch it HERE, full screen, in HD for best results.

1 Comment »

  1. I would like to say that I am compelled by your site. Raising a daughter for fourteen years with CHD, and my ten year of loss I have myself began to work on giving back to the community and help make sense of what each go through in a life of CHD.

    I plan to follow you and maybe one day we can talk.

    Chef Elizabeth Stelling
    In memory of Anelisa Dillion, 1986-2000

    Comment by Chef E — June 24, 2010 @ 11:03 pm

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